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Readability of Patient-Reported Outcome Measures for Persons with Aphasia
Title
Readability of Patient-Reported Outcome Measures for Persons with Aphasia.
Creator
Gray, Sara, Wilson, Lauren Bislick, Engelhoven, Amy, Zraick, Richard, University of Central Florida
Abstract / Description
The relationship between positive health outcomes in persons with aphasia (PWA) and personcentered care is highlighted by personally relevant information obtained directly from the PWA. Such is often facilitated via patient reported outcome measures (PROMs). In order to provide accurate responses to PROMs, PWAs must to read, comprehend, formulate and generate answersto a variety of questions. PROMs designed for other clinical populations assessed/treated by speech-language pathologists have...
Show moreThe relationship between positive health outcomes in persons with aphasia (PWA) and personcentered care is highlighted by personally relevant information obtained directly from the PWA. Such is often facilitated via patient reported outcome measures (PROMs). In order to provide accurate responses to PROMs, PWAs must to read, comprehend, formulate and generate answersto a variety of questions. PROMs designed for other clinical populations assessed/treated by speech-language pathologists have been found to be largely unreadable. Despite the significant role of PROMs in assessment and management of aphasia, no study to date has examined the readability of these measures. Four readability formulae were applied to identified PROMs for PWAs. These formulae estimate readability in terms of reading grade level and provide additional, quantitative information regarding textual elements such as syllable, word, and sentence length, complexity, and frequency. Fourteen PROMs were identified, per review of extant literature. A Macintosh-based readability software program was used to perform readability analyses. Additional metrics of clinical utility were applied to the selected measures via the Clinical Utility Scale. Results indicate that, on average, PROMs designed for PWAs are written at an eighth-grade reading level which is discordant with fourth-to-sixth reading gradelevel recommendations set forth by health literacy experts. Scores derived from the Clinical Utility Scale highlight the disconnect among measures that are easy to implement but are unreadable. Further analysis indicates that syllable-, word-, and sentence-level complexities can also impact the difficulty of analyzed texts. Results of the present study are consistent with prior PROM analyses performed across a variety of clinical populations assessed/treated by speech-language pathologists. Clinical implications and limitations of the present study are discussed as well as directions for further research.
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Date Issued
2019
Identifier
CFE0007462, ucf:52661
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007462
Caregiver-proxy and individual with aphasia self-report agreement on the modified perceived stress scale and mutuality scale
Title
Caregiver-proxy and individual with aphasia self-report agreement on the modified perceived stress scale and mutuality scale.
Creator
Hernandez, Nelson, Wilson, Lauren Bislick, Engelhoven, Amy, Hunting Pompon, Rebecca, Troche, Joshua, University of Central Florida
Abstract / Description
The level of agreement proxy-caregivers have with individuals with aphasia (IWAs) on a measure of perceived stress has yet to be systematically investigated. According to the extant literature, there is less agreement on psychosocial domains between proxy-caregivers and IWAs. In addition, high levels of mutuality have been strongly associated with low levels of stress in stroke survivors; however, these studies are not been specific to IWAs. The proposed study sought to examine the degree of...
Show moreThe level of agreement proxy-caregivers have with individuals with aphasia (IWAs) on a measure of perceived stress has yet to be systematically investigated. According to the extant literature, there is less agreement on psychosocial domains between proxy-caregivers and IWAs. In addition, high levels of mutuality have been strongly associated with low levels of stress in stroke survivors; however, these studies are not been specific to IWAs. The proposed study sought to examine the degree of agreement between proxy-caregiver reports and IWAs' perceived stress using a modified stress scale specifically for IWAs. This study also examined the relationship between perceived stress and mutuality of the relationship between the caregiver and IWAs. The modified Perceived Stress Scale (mPSS), a proxy version of the mPSS, and the Mutuality Scale (MS) were administered to 12 dyads. An independent sample t-test was conducted to determine if there were significant differences in perceived stress and mutuality as reported by the caregiver, proxy-caregiver and IWA. A Pearson correlation was performed to determine the level of agreement across questionnaires. Results show a moderate correlation on mPSS ratings between the proxy-caregiver and IWA. On average, proxy ratings on the mPSS were significantly higher than reports from IWAs. There was strong agreement on mutuality among the dyads and a moderate correlation between mutuality agreement and proxy agreement. Finally, there was a moderate correlation between the caregiver's mPSS score and increased disagreement between the proxy-caregiver and the IWA's mPSS score. These findings suggest a moderate agreement on perceived stress among caregivers and IWAs. Differences in agreement on perceived stress for proxy-caregiver and IWAs were minimized when perceived mutuality between the dyads were high. Further, caregivers were more likely to overestimate the perceived stress of IWAs when their own mPSS ratings were high. Study limitations and future directions are also discussed.
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Date Issued
2019
Identifier
CFE0007652, ucf:52464
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007652