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THE PSYCHOSOCIAL EFFECTS OF APHASIA ON THE CAREGIVER
Title
THE PSYCHOSOCIAL EFFECTS OF APHASIA ON THE CAREGIVER.
Creator
Ferrara, Lauren A, Whiteside, Janet D., Wharton, Tracy; Zraick, Richard, University of Central Florida
Abstract / Description
Studies have investigated the physical and emotional wellbeing of family members and spouses who care for persons with stroke (Bakas, et al. 2006). Literature shows burden of care is high in role reversal and depression is frequent. Variables that affect the caregiver burden with persons with aphasia (PWA) have not been identified prior to this study. Results from caregiver interviews found six themes, some which have not been identified prior, such as feelings of optimism.
Date Issued
2017
Identifier
CFH2000175, ucf:45968
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000175
Readability of Patient-Reported Outcome Measures for Persons with Aphasia
Title
Readability of Patient-Reported Outcome Measures for Persons with Aphasia.
Creator
Gray, Sara, Wilson, Lauren Bislick, Engelhoven, Amy, Zraick, Richard, University of Central Florida
Abstract / Description
The relationship between positive health outcomes in persons with aphasia (PWA) and personcentered care is highlighted by personally relevant information obtained directly from the PWA. Such is often facilitated via patient reported outcome measures (PROMs). In order to provide accurate responses to PROMs, PWAs must to read, comprehend, formulate and generate answersto a variety of questions. PROMs designed for other clinical populations assessed/treated by speech-language pathologists have...
Show moreThe relationship between positive health outcomes in persons with aphasia (PWA) and personcentered care is highlighted by personally relevant information obtained directly from the PWA. Such is often facilitated via patient reported outcome measures (PROMs). In order to provide accurate responses to PROMs, PWAs must to read, comprehend, formulate and generate answersto a variety of questions. PROMs designed for other clinical populations assessed/treated by speech-language pathologists have been found to be largely unreadable. Despite the significant role of PROMs in assessment and management of aphasia, no study to date has examined the readability of these measures. Four readability formulae were applied to identified PROMs for PWAs. These formulae estimate readability in terms of reading grade level and provide additional, quantitative information regarding textual elements such as syllable, word, and sentence length, complexity, and frequency. Fourteen PROMs were identified, per review of extant literature. A Macintosh-based readability software program was used to perform readability analyses. Additional metrics of clinical utility were applied to the selected measures via the Clinical Utility Scale. Results indicate that, on average, PROMs designed for PWAs are written at an eighth-grade reading level which is discordant with fourth-to-sixth reading gradelevel recommendations set forth by health literacy experts. Scores derived from the Clinical Utility Scale highlight the disconnect among measures that are easy to implement but are unreadable. Further analysis indicates that syllable-, word-, and sentence-level complexities can also impact the difficulty of analyzed texts. Results of the present study are consistent with prior PROM analyses performed across a variety of clinical populations assessed/treated by speech-language pathologists. Clinical implications and limitations of the present study are discussed as well as directions for further research.
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Date Issued
2019
Identifier
CFE0007462, ucf:52661
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007462
Effects of symbol type on naming and identification of graphic symbols by typically developing three, four, five and six-year olds children.
Title
Effects of symbol type on naming and identification of graphic symbols by typically developing three, four, five and six-year olds children.
Creator
Resnick, Pamela, Kent-Walsh, Jennifer, Schwartz, Jamie, Zraick, Richard, Bai, Haiyan, University of Central Florida
Abstract / Description
Speech-language pathologists and educators face unique challenges in assessing the language skills of children with complex communication needs due to the wide array of impairments with which these individuals present. For example, most receptive language assessment tools require that children either point to or label line drawings to determine whether or not they comprehend the depicted concepts; task demands such as these preclude administering such assessment tools with children who are...
Show moreSpeech-language pathologists and educators face unique challenges in assessing the language skills of children with complex communication needs due to the wide array of impairments with which these individuals present. For example, most receptive language assessment tools require that children either point to or label line drawings to determine whether or not they comprehend the depicted concepts; task demands such as these preclude administering such assessment tools with children who are unable to physically point to or verbally label presented stimuli. In light of these challenges, the use of eye tracking technologies has become particularly appealing since this alternate response mode reduces the behavioral demands associated with standardized assessment procedures. Another challenge clinicians and educators face as they strive to ensure accurate receptive language assessment results with children who have complex communication needs is the type of stimuli utilized in such assessments. When individuals with cognitive delays are presented with stimuli that may not be comprehensible to them, there is a risk of under-estimating language comprehension abilities (Emerson, 2003). Given the documented challenges that individuals with disabilities often have in identifying constructs depicted by the types of line drawings typically included in receptive language assessment tools (e.g., Mirenda (&) Locke, 1989; Mizuko, 1987), there is a critical need to include recognizable stimuli in assessment tools in order to determine this population's true receptive language capabilities. Beyond this potential to improve the validity of receptive language assessments, improvement in assessment practices such as these also have potential positive implications for effective AAC technology selection and AAC treatment planning.The current investigation examined the effect of symbol type (color photograph symbols1 vs. SymbolStix(&)copy;2 color line drawing symbols) on identification and naming of graphic symbols for nouns, verbs and adjectives in typically developing three, four, five and six-year old children. A quasi-experimental design was employed, with counterbalance for experimental stimuli (color photograph symbols1 vs. SymbolStix(&)copy;2 symbols) and task (identification task vs. naming task). Eighty-nine participants completed the identification and naming tasks with both examined symbol types (color photograph symbols1 vs. SymbolStix(&)copy;2 symbols) on two different days. Multivariate Analysis of Variance (MANOVA) was used to examine the effects of symbol type on both accuracy and rate of identification, and on accuracy of naming. Bivariate correlation was completed to determine the relationship between participants' touch and eye identification rates, and to determine the relationship between identification accuracy and eye rate. Mean scores revealed that all participants achieved higher accuracy for the identification and naming tasks with color photograph symbols1, and that participants evidenced faster touch and eye identification rates for the color photograph symbol1 condition. These findings suggest that color photograph symbols1 are more transparent and thus more easily identifiable. Therefore, potential future assessment modifications include the incorporation of color photograph symbols1 as stimuli and eye gaze as a selection option within AAC assessment tools. Overall, results of this study have the potential to change the way speech-language pathologists and educators assess the receptive language skills of children with complex communication needs to yield more accurate assessment results.
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Date Issued
2017
Identifier
CFE0006909, ucf:51701
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0006909