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THE LIVED EXPERIENCE OF YOUNG ONSET DEMENTIA
Title
THE LIVED EXPERIENCE OF YOUNG ONSET DEMENTIA.
Creator
Hunt, Debra, Aroian, Karen, University of Central Florida
Abstract / Description
Dissertation Title: The Lived Experience of Young Onset Dementia Purpose: The lived experiences of dementia in older persons have been well studied, but the unique experiences of persons between ages 35 and 65 years who are living with young-onset dementia have not been closely examined. The purpose of this research was to explore the experiences of middle-aged individuals' living with young-onset dementia. Methods: van Manen's (1990) approach to interpretive phenomenological inquiry was used...
Show moreDissertation Title: The Lived Experience of Young Onset Dementia Purpose: The lived experiences of dementia in older persons have been well studied, but the unique experiences of persons between ages 35 and 65 years who are living with young-onset dementia have not been closely examined. The purpose of this research was to explore the experiences of middle-aged individuals' living with young-onset dementia. Methods: van Manen's (1990) approach to interpretive phenomenological inquiry was used to answer the research question. Purposive sampling was used to recruit nine people between 42 and 61 years of age who received a formal diagnosis of mild or early-stage dementia. Semi-structured, conversational interviews were used to gather the data. Consistent with van Manen's method of phenomenological reflection, theme analysis using the selective approach was used to gather the essential meanings of the experience. Results: Six themes were extracted from 19 conversational interviews with persons living with young-onset dementia: feeling frustrated, fear of slipping away, loss of personhood, life interrupted, finding a sense of security in the familiar, and wanting one's voice to be heard. These themes are interpretations of the human experience of living with dementia and are not intended to be generalizations or theoretical concepts. Discussion/Implications: The experiences described in this study raise awareness about young-onset dementia and help health care practitioners and society-at-large develop a better understanding of what it is like to live with the disease. The misperception that people suffering from dementia do not have insight and the underestimation of their abilities is a great source of frustration for these people. Study findings also suggest that middle-age people with dementia want to be involved in meaningful, productive activities. Their resounding plea is to have their personhood embraced instead of negated.
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Date Issued
2011
Identifier
CFE0003614, ucf:48867
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0003614
YOUNG ONSET DEMENTIA: THE CHILD'S EXPERIENCE WITH COPING
Title
YOUNG ONSET DEMENTIA: THE CHILD'S EXPERIENCE WITH COPING.
Creator
Zeher, Jamie, Loerzel, Victoria, University of Central Florida
Abstract / Description
Young onset dementia (YOD) affects not only the person diagnosed, but the family unit as a whole. It is estimated that as many as 500,000 people in the United States have YOD and around 250,000 children are involved in caring for these people. A child of a parent with YOD can begin to experience negative effects when the child begins to take part in caregiving for the person with young onset dementia (PWYOD). Feelings of stress, anger, fear of the future, depression, social isolation, and...
Show moreYoung onset dementia (YOD) affects not only the person diagnosed, but the family unit as a whole. It is estimated that as many as 500,000 people in the United States have YOD and around 250,000 children are involved in caring for these people. A child of a parent with YOD can begin to experience negative effects when the child begins to take part in caregiving for the person with young onset dementia (PWYOD). Feelings of stress, anger, fear of the future, depression, social isolation, and increasing responsibility of caring for the PWYOD can be felt by children as caregivers. Research shows that children of people with YOD have reported an extreme lack of support and decreased communication within the family. The purpose of this thesis was to examine current interventions designed to improve coping for children of parents with YOD. A review of literature using CINAHL, Medline, and PsychINFO was conducted to gather peer-reviewed articles and journals relating to interventions to help children of parents with YOD cope. However, no studies have discussed interventions specifically for the child. Therefore, information was pulled from 5 studies regarding what children of people with YOD feel has helped them, in their respective experiences, to deal with the stresses of a parent with YOD. Research suggests that individualized care should be provided for these children based on: age, developmental stage, and experience. Children have reported that they cope by spending time away from the home, participating in extracurricular activities, and spending time with friends. Clear communication by all members of the family is also reported to be vital in easing the stresses of caring for a parent with YOD. While children have developed these coping mechanisms, interventions need to be formally designed and their effect on improving coping examined. Analyzing the experiences of the children with parents with YOD is necessary for clinicians to gain insight into what interventions worked for this population, and what interventions need to be created for further and more individualized support.
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Date Issued
2013
Identifier
CFH0004405, ucf:45147
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004405
USE OF A MUSIC AND MEMORY PROGRAM BY CAREGIVERS OF PERSONS WITH DEMENTIA
Title
USE OF A MUSIC AND MEMORY PROGRAM BY CAREGIVERS OF PERSONS WITH DEMENTIA.
Creator
Mendez Campos, Barbara, Gammonley, Denise, University of Central Florida
Abstract / Description
Although use of personal music devices by persons with dementia and their caregivers is now widespread, there is limited literature concerning music and memory's effects on caregivers for persons with dementia. Caregivers were provided an iPod by two respite agencies and were encouraged to use it with their care recipient. A mailed survey of 50 caregivers who received an IPod explored: (a) associations between use of an iPod and caregiver self-efficacy, burden, and care recipient functional...
Show moreAlthough use of personal music devices by persons with dementia and their caregivers is now widespread, there is limited literature concerning music and memory's effects on caregivers for persons with dementia. Caregivers were provided an iPod by two respite agencies and were encouraged to use it with their care recipient. A mailed survey of 50 caregivers who received an IPod explored: (a) associations between use of an iPod and caregiver self-efficacy, burden, and care recipient functional abilities, and; (b) if the method of presenting the music playlist was associated with use of the iPod. Associations were examined for 10 complete surveys returned by caregiver respondents using non-parametric methods. There was no relationship between self-efficacy, burden, functional abilities and use of the iPod. A content analysis was conducted of caregiver open-ended responses to questions about factors associated with use of the device. Mean caregiver age in this study was 75 years of age, care recipient mean was 79 years of age. On average caregivers used the IPods 2-3 times per month. Scores on caregiver burden measured by the 12-item Zarit Burden Interview had a mean of 12.5 which suggests a moderate level of burden. Emergent themes from caregiver open-ended responses about using the device revealed care recipients as primary users, use mostly in the evening, and in response to caregiving tasks or difficult care recipient behaviors. Keywords: Music and memory, dementia caregiver burden, self-efficacy
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Date Issued
2017
Identifier
CFH2000181, ucf:46046
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000181
THE USE OF HERBAL SUPPLEMENTS ON MINIMIZING THE CLINICAL MANIFESTATIONS OF ALZHEIMER'S DISEASE
Title
THE USE OF HERBAL SUPPLEMENTS ON MINIMIZING THE CLINICAL MANIFESTATIONS OF ALZHEIMER'S DISEASE.
Creator
Donohue, Delayna L, D'Amato-Kubiet, Leslee, University of Central Florida
Abstract / Description
Alzheimer's disease (AD) affects over 5 million individuals in the United States annually. By the year 2050, the number of individuals living with AD is projected to triple (Latest Alzheimer's Facts and Figures, 2016). Although there is no cure for AD, there are many prescriptive pharmacologic agents used to help manage the clinical manifestations of the disease. Complementary and alternative medicines (CAM) and herbal supplements are also used in the treatment of AD, however indications for...
Show moreAlzheimer's disease (AD) affects over 5 million individuals in the United States annually. By the year 2050, the number of individuals living with AD is projected to triple (Latest Alzheimer's Facts and Figures, 2016). Although there is no cure for AD, there are many prescriptive pharmacologic agents used to help manage the clinical manifestations of the disease. Complementary and alternative medicines (CAM) and herbal supplements are also used in the treatment of AD, however indications for their use and effectiveness during the progression of AD have not been examined. The purpose of this study was to examine the use of herbal supplements in managing the clinical manifestations of AD. The secondary purpose was to compare a variety of herbal supplements used to treat the clinical manifestations of AD and to evaluate the most widely used and most beneficial for clinical practice. A literature review examining herbal supplements and their risks, benefits, and uses in AD was conducted from multiple online databases. Peer reviewed articles published in the English language from 1998-2016 that focused on herbal supplements used to control the clinical manifestations of mild to severe AD were included for synthesis. Results from 14 studies that used herbal supplements as a treatment for the clinical manifestations of AD were compared for effectiveness in the management of symptoms. The findings suggest Ginkgo Biloba is the most effective and widely used herbal supplement in the treatment for cognitive decline in AD. Other supplements including Saffron, Curcumin, Cistanches Herba, and Sage were found to improve memory function and activities of daily living in individuals with AD. Herbal supplements can be cost effective and easier to retrieve for many individuals in comparison with prescriptive drug therapy. Although the research demonstrated beneficial results with the use of herbal supplements, the limitations of these studies make the application of the results problematic. Therefore, further research in this area is required.
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Date Issued
2017
Identifier
CFH0000237, ucf:44670
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0000237
THE SERVICE LEARNING EXPERIENCE: HOW STORYTELLING EVOLVES IN PEOPLE WITH ALZHEIMER'S AND DEMENTIA AND WHY THIS IS IMPORTANT TO THE CREATIVE WRITING STUDENT AND THE COMMUNITY
Title
THE SERVICE LEARNING EXPERIENCE: HOW STORYTELLING EVOLVES IN PEOPLE WITH ALZHEIMER'S AND DEMENTIA AND WHY THIS IS IMPORTANT TO THE CREATIVE WRITING STUDENT AND THE COMMUNITY.
Creator
Spicer, Alice, Thaxton, Terry, University of Central Florida
Abstract / Description
All meaningful communication is a form of storytelling, according to Walter Fisher, who introduced the narrative paradigm to communication theory, and storytelling is universal across cultures and time as the manner in which people comprehend life. Storytelling is also a creative form of art. This interdisciplinary, multimedia work will explore the creative use of non-traditional storytelling to gather information about how creativity evolves in people with Alzheimer's and dementia and why...
Show moreAll meaningful communication is a form of storytelling, according to Walter Fisher, who introduced the narrative paradigm to communication theory, and storytelling is universal across cultures and time as the manner in which people comprehend life. Storytelling is also a creative form of art. This interdisciplinary, multimedia work will explore the creative use of non-traditional storytelling to gather information about how creativity evolves in people with Alzheimer's and dementia and why this is important to both academia and the community. Currently, there is a lot of research available about the debilitating affects of memory loss, but there is very little research available about retained abilities. Perhaps, just as the blind significantly outperform the sighted in tactile experiments, there are some forms of creativity in storytelling in which people with Alzheimer's and dementia may demonstrate more ability than their fully cognizant peers. My goal is to contribute to a small but growing effort to explore "memory loss as more than just memory loss" (Dr. Anne Bastings).
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Date Issued
2013
Identifier
CFH0004442, ucf:45104
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004442
EXAMINATION OF THE RELATIONSHIP BETWEEN SPORT CONCUSSION AND LONG TERM NEURODEGENERATIVE AND PSYCHOLOGICAL DISORDERS: A LITERATURE REVIEW.
Title
EXAMINATION OF THE RELATIONSHIP BETWEEN SPORT CONCUSSION AND LONG TERM NEURODEGENERATIVE AND PSYCHOLOGICAL DISORDERS: A LITERATURE REVIEW.
Creator
Rivera, Vivian, Schellhase, Kristen, University of Central Florida
Abstract / Description
Background: According to the Center for Disease Control and Prevention, approximately 1.6 to 3.8 million Americans suffer a sports related concussion each year. Concussion is defined as a transient alteration of the brain structure caused by a direct or indirect force. During the last decade, a vast amount of clinical research on the long term effects of repetitive head trauma has occurred, especially on the subject of chronic traumatic encephalopathy (CTE), depression and dementia. Objective...
Show moreBackground: According to the Center for Disease Control and Prevention, approximately 1.6 to 3.8 million Americans suffer a sports related concussion each year. Concussion is defined as a transient alteration of the brain structure caused by a direct or indirect force. During the last decade, a vast amount of clinical research on the long term effects of repetitive head trauma has occurred, especially on the subject of chronic traumatic encephalopathy (CTE), depression and dementia. Objective: The purpose of this literature review is to examine the literature pertaining to multiple concussion and the long-term effects of multiple concussion such as neurodegenerative diseases and psychological. Methods: A literature review was conducted using an electronic search of the following databases: MEDLINE, Cochrane Database of Systematic Reviews, and SportDiscus. The key search terms included were concussion, "sport concussion" and "sports concussion". One of the above three terms needed to be in conjunction with one of the following key search terms: depression, dementia, "mild cognitive impairment", "chronic traumatic encephalopathy" (CTE), or "psychological disorder". Additional inclusion criteria also included studies that targeted the adult athlete population who had sustained more than one concussion. Studies only were included if they were peer-reviewed, in the English language, and were published after 1990. To be included in the review, the study must have examined the long term effects of repetitive concussion. Results: The research completed to date suggests there is a strong correlation between the number of concussions an athlete suffers and the long-term ramifications of neurodegenerative and psychological disorders. However, more research is needed.
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Date Issued
2013
Identifier
CFH0004342, ucf:45015
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004342
EXPERIENCES OF HOSPITALIZED PATIENTS WITH DEMENTIA
Title
EXPERIENCES OF HOSPITALIZED PATIENTS WITH DEMENTIA.
Creator
Bainbridge, Samantha, LaManna, Jacqueline, University of Central Florida
Abstract / Description
People with dementia are hospitalized for a variety of reasons. The combination of dementia with additional health conditions creates a unique challenge to caregivers in acute care settings. There is a dearth of information available to provide guidance to the nursing staff caring for these patients. This integrated review of the literature examined the experiences of hospitalization from the perspective of the older adult with dementia, the family caregiver, and the patient care staff....
Show morePeople with dementia are hospitalized for a variety of reasons. The combination of dementia with additional health conditions creates a unique challenge to caregivers in acute care settings. There is a dearth of information available to provide guidance to the nursing staff caring for these patients. This integrated review of the literature examined the experiences of hospitalization from the perspective of the older adult with dementia, the family caregiver, and the patient care staff. Results showed a limited body of literature that addressed hospital experiences of people with dementia and those of family and professional caregivers. Additionally, few studies addressing this topic have been conducted in the United States. The primary finding from this study is that better communication is needed between nursing staff, patients, and their family caregivers. Nurses should carry out detailed assessments of cognition and pain in all elderly patients, and strive to provide appropriate palliative and end-of-life care. Dementia- specific training for all staff members may help to promote a better understanding of patients with dementia. Lastly, further research into the experiences of hospitalized dementia patients is needed, with a focus on acute care settings within the United States.
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Date Issued
2012
Identifier
CFH0004146, ucf:44855
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004146
FIVE DEGREES: A SHORT STORY
Title
FIVE DEGREES: A SHORT STORY.
Creator
Hinds, Cassia E, Grajeda, Anthony, University of Central Florida
Abstract / Description
An interwoven fiction piece representing four perspectives and its effects on self-awareness. The most effective way to blur the line of self in this structure is to braid the minds, voices, and stories, of each perspective. With a focal point where all the voices eventually drift to being the frame of the story, there will be a unique distance between the stories. This thesis explores the effects of different types of mental and physiological illnesses through fiction, highlighting the...
Show moreAn interwoven fiction piece representing four perspectives and its effects on self-awareness. The most effective way to blur the line of self in this structure is to braid the minds, voices, and stories, of each perspective. With a focal point where all the voices eventually drift to being the frame of the story, there will be a unique distance between the stories. This thesis explores the effects of different types of mental and physiological illnesses through fiction, highlighting the effect of perception on fact and the perspective of the mentally ill.
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Date Issued
2016
Identifier
CFH2000124, ucf:45992
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000124
EFFECTS OF MUSIC THERAPY ON INDIVIDUALS WITH DEMENTIA: AN INTERGRATIVE LITERATURE REVIEW
Title
EFFECTS OF MUSIC THERAPY ON INDIVIDUALS WITH DEMENTIA: AN INTERGRATIVE LITERATURE REVIEW.
Creator
Sanchez, Liani, Bushy, Angeline, University of Central Florida
Abstract / Description
The purpose of this integrative review was to examine the effects of music therapy, a complementary intervention, on individuals with dementia. Peer-reviewed journals were retrieved from MEDLINE, CINAHL, CINAHL Plus with Full Text, Cochrane Central Register of Controlled Trials, Music Index to evaluate their relevance to music therapy use in people diagnosed with dementia. English and Spanish-language research articles published from 2000-2017 were included for the review (n=15). The...
Show moreThe purpose of this integrative review was to examine the effects of music therapy, a complementary intervention, on individuals with dementia. Peer-reviewed journals were retrieved from MEDLINE, CINAHL, CINAHL Plus with Full Text, Cochrane Central Register of Controlled Trials, Music Index to evaluate their relevance to music therapy use in people diagnosed with dementia. English and Spanish-language research articles published from 2000-2017 were included for the review (n=15). The literature indicates the use of music therapy as an adjuvant therapy for the treatment of dementia in older adults may be beneficial in decreasing symptoms of aggression, anxiety, agitation and depression. Music therapy is used in varying settings, but more specifically in long term care facilities. This complementary therapy enhances the quality of life in persons with dementia and facilitates empathetic relationships between residents and the staff.The literature indicates that music therapy, involving singing, listening to music, music and movement, when performed by a certified music therapist can have beneficial effects for people with dementia, especially when pharmacological treatments alone do manage symptoms associated with this disorder. Implications for nursing practice, education, policy and research are discussed along with study limitations.
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Date Issued
2018
Identifier
CFH2000392, ucf:45815
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000392
Young Adult Development and Caregiving: Disposition and Involvement in Care
Title
Young Adult Development and Caregiving: Disposition and Involvement in Care.
Creator
James, Nicholas, Paulson, Daniel, Dvorak, Robert, Wharton, Tracy, University of Central Florida
Abstract / Description
Caregivers are a diverse group of individuals with a variety of backgrounds and roles; however, research has widely overlooked young adults in this population. This study investigated young adult caregiver circumstance, burden, and use of support services with the purpose of improving future caregiving research and interventions. Study 1 compared burden and circumstance among young, middle aged, and older adult caregivers (N = 285) in addition to developmental indicators among young adults...
Show moreCaregivers are a diverse group of individuals with a variety of backgrounds and roles; however, research has widely overlooked young adults in this population. This study investigated young adult caregiver circumstance, burden, and use of support services with the purpose of improving future caregiving research and interventions. Study 1 compared burden and circumstance among young, middle aged, and older adult caregivers (N = 285) in addition to developmental indicators among young adults caregiver and demographically matched non-caregiver peers (n = 225). Study 2 surveyed caregivers from each age group (N = 151) on barriers to care, treatment preferences, and interest in services. Results from study 1 indicated that young adult caregivers adopted similar caregiving roles and factors linked to burden; however, they reported additional stressors such as higher rates of childcare and commuting to provide care. Compared to demographically matched-peers, young adult caregivers were more likely to work part-time and earn a substantially lower yearly income. Study 2 replicated original findings and revealed that young adult caregivers endorsed elevated attitudinal barriers to care and are the least likely age group to speak to physicians about caregiving. Overall, findings reveal the similarity in caregiving role that young adults take on, as well as several unique burden factors. Caregivers across age groups disclosed moderate treatment expectancy for support services, and all reported greater interest in online-based treatment. Young adult caregivers were more likely to take on responsibilities such as childrearing and employment, thus impacting their available time and financial support. However, these findings do not explain the overwhelming lack of young adult caregivers in research. Future studies should re-evaluate sampling methods and inclusion criteria, or explore more accessible means of intervention, such as web-based services.
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Date Issued
2018
Identifier
CFE0007018, ucf:52027
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007018
THE EFFICACY OF A 6-WEEK EVIDENCE-BASED SUPPORT GROUP FOR CAREGIVERS OF DEMENTIA IN A PRIMARY CARE SETTING
Title
THE EFFICACY OF A 6-WEEK EVIDENCE-BASED SUPPORT GROUP FOR CAREGIVERS OF DEMENTIA IN A PRIMARY CARE SETTING.
Creator
Shah, Mona, Paulson, Daniel, Cassisi, Jeffrey, Sims, Valerie, University of Central Florida
Abstract / Description
More than 16 million Americans provide unpaid care for those with Alzheimer's disease and other dementias. Extant literature has well documented the increased risk for physical, emotional, social and financial burden associated with caregiving. While intensive support groups may be well-suited to caregiver needs, they are often difficult to implement given financial, personnel and resource constraints. Thus, the purpose of this study is to examine the efficacy of a theoretically-based, 6-week...
Show moreMore than 16 million Americans provide unpaid care for those with Alzheimer's disease and other dementias. Extant literature has well documented the increased risk for physical, emotional, social and financial burden associated with caregiving. While intensive support groups may be well-suited to caregiver needs, they are often difficult to implement given financial, personnel and resource constraints. Thus, the purpose of this study is to examine the efficacy of a theoretically-based, 6-week caregiver support group in a community primary care setting. The group focuses on self-care, behavior management techniques and interdisciplinary caregiver resources. A total of 22 participants completed the active caregiver support group and they were compared to 19 control participants who participated in community caregiver support groups. Participants on average were in their mid-60s, mostly female and Caucasian, and identified as either the care recipient's child or spouse. All participants completed self-report measures related to demographic information, caregiver preparedness (Caregiver Preparedness Scale), caregiver strain (Caregiver Strain Index), caregiver depressive symptoms (CESD-10), and care recipient's neuropsychiatric symptoms (NPI-Q), at baseline and at 6-weeks. Participants in the active caregiver support group also completed a satisfaction survey. Results from two-way mixed ANCOVA analyses revealed a time by group interaction effect for caregiver preparedness, such that caregivers in the active group demonstrated a significant increase in mean caregiver preparedness scores while scores remained invariant for the control group. No significant main effects nor group by time interaction effects were found for caregiver strain, caregiver depressive symptoms and caregiver distress related to neuropsychiatric symptoms. Participants in the active caregiver support group rated being largely satisfied with the group. Results suggest that this 6-week caregiver support group may be a promising caregiver intervention that can be readily implemented and accessible in primary care clinics. Further research with larger sample sizes is recommended.
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Date Issued
2018
Identifier
CFE0007370, ucf:52098
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007370