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Caregiver-proxy and individual with aphasia self-report agreement on the modified perceived stress scale and mutuality scale

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Date Issued:
2019
Abstract/Description:
The level of agreement proxy-caregivers have with individuals with aphasia (IWAs) on a measure of perceived stress has yet to be systematically investigated. According to the extant literature, there is less agreement on psychosocial domains between proxy-caregivers and IWAs. In addition, high levels of mutuality have been strongly associated with low levels of stress in stroke survivors; however, these studies are not been specific to IWAs. The proposed study sought to examine the degree of agreement between proxy-caregiver reports and IWAs' perceived stress using a modified stress scale specifically for IWAs. This study also examined the relationship between perceived stress and mutuality of the relationship between the caregiver and IWAs. The modified Perceived Stress Scale (mPSS), a proxy version of the mPSS, and the Mutuality Scale (MS) were administered to 12 dyads. An independent sample t-test was conducted to determine if there were significant differences in perceived stress and mutuality as reported by the caregiver, proxy-caregiver and IWA. A Pearson correlation was performed to determine the level of agreement across questionnaires. Results show a moderate correlation on mPSS ratings between the proxy-caregiver and IWA. On average, proxy ratings on the mPSS were significantly higher than reports from IWAs. There was strong agreement on mutuality among the dyads and a moderate correlation between mutuality agreement and proxy agreement. Finally, there was a moderate correlation between the caregiver's mPSS score and increased disagreement between the proxy-caregiver and the IWA's mPSS score. These findings suggest a moderate agreement on perceived stress among caregivers and IWAs. Differences in agreement on perceived stress for proxy-caregiver and IWAs were minimized when perceived mutuality between the dyads were high. Further, caregivers were more likely to overestimate the perceived stress of IWAs when their own mPSS ratings were high. Study limitations and future directions are also discussed.
Title: Caregiver-proxy and individual with aphasia self-report agreement on the modified perceived stress scale and mutuality scale.
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Name(s): Hernandez, Nelson, Author
Wilson, Lauren Bislick, Committee Chair
Engelhoven, Amy, Committee Member
Hunting Pompon, Rebecca, Committee Member
Troche, Joshua, Committee Member
University of Central Florida, Degree Grantor
Type of Resource: text
Date Issued: 2019
Publisher: University of Central Florida
Language(s): English
Abstract/Description: The level of agreement proxy-caregivers have with individuals with aphasia (IWAs) on a measure of perceived stress has yet to be systematically investigated. According to the extant literature, there is less agreement on psychosocial domains between proxy-caregivers and IWAs. In addition, high levels of mutuality have been strongly associated with low levels of stress in stroke survivors; however, these studies are not been specific to IWAs. The proposed study sought to examine the degree of agreement between proxy-caregiver reports and IWAs' perceived stress using a modified stress scale specifically for IWAs. This study also examined the relationship between perceived stress and mutuality of the relationship between the caregiver and IWAs. The modified Perceived Stress Scale (mPSS), a proxy version of the mPSS, and the Mutuality Scale (MS) were administered to 12 dyads. An independent sample t-test was conducted to determine if there were significant differences in perceived stress and mutuality as reported by the caregiver, proxy-caregiver and IWA. A Pearson correlation was performed to determine the level of agreement across questionnaires. Results show a moderate correlation on mPSS ratings between the proxy-caregiver and IWA. On average, proxy ratings on the mPSS were significantly higher than reports from IWAs. There was strong agreement on mutuality among the dyads and a moderate correlation between mutuality agreement and proxy agreement. Finally, there was a moderate correlation between the caregiver's mPSS score and increased disagreement between the proxy-caregiver and the IWA's mPSS score. These findings suggest a moderate agreement on perceived stress among caregivers and IWAs. Differences in agreement on perceived stress for proxy-caregiver and IWAs were minimized when perceived mutuality between the dyads were high. Further, caregivers were more likely to overestimate the perceived stress of IWAs when their own mPSS ratings were high. Study limitations and future directions are also discussed.
Identifier: CFE0007652 (IID), ucf:52464 (fedora)
Note(s): 2019-08-01
M.A.
Health Professions and Sciences, School of Communication Sciences and Disorders
Masters
This record was generated from author submitted information.
Subject(s): stroke -- aphasia -- caregiver -- proxy -- stress -- mutuality
Persistent Link to This Record: http://purl.flvc.org/ucf/fd/CFE0007652
Restrictions on Access: campus 2024-08-15
Host Institution: UCF

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