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(1 - 7 of 7)
- Title
- THE LIVED EXPERIENCE OF YOUNG ONSET DEMENTIA.
- Creator
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Hunt, Debra, Aroian, Karen, University of Central Florida
- Abstract / Description
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Dissertation Title: The Lived Experience of Young Onset Dementia Purpose: The lived experiences of dementia in older persons have been well studied, but the unique experiences of persons between ages 35 and 65 years who are living with young-onset dementia have not been closely examined. The purpose of this research was to explore the experiences of middle-aged individuals' living with young-onset dementia. Methods: van Manen's (1990) approach to interpretive phenomenological inquiry was used...
Show moreDissertation Title: The Lived Experience of Young Onset Dementia Purpose: The lived experiences of dementia in older persons have been well studied, but the unique experiences of persons between ages 35 and 65 years who are living with young-onset dementia have not been closely examined. The purpose of this research was to explore the experiences of middle-aged individuals' living with young-onset dementia. Methods: van Manen's (1990) approach to interpretive phenomenological inquiry was used to answer the research question. Purposive sampling was used to recruit nine people between 42 and 61 years of age who received a formal diagnosis of mild or early-stage dementia. Semi-structured, conversational interviews were used to gather the data. Consistent with van Manen's method of phenomenological reflection, theme analysis using the selective approach was used to gather the essential meanings of the experience. Results: Six themes were extracted from 19 conversational interviews with persons living with young-onset dementia: feeling frustrated, fear of slipping away, loss of personhood, life interrupted, finding a sense of security in the familiar, and wanting one's voice to be heard. These themes are interpretations of the human experience of living with dementia and are not intended to be generalizations or theoretical concepts. Discussion/Implications: The experiences described in this study raise awareness about young-onset dementia and help health care practitioners and society-at-large develop a better understanding of what it is like to live with the disease. The misperception that people suffering from dementia do not have insight and the underestimation of their abilities is a great source of frustration for these people. Study findings also suggest that middle-age people with dementia want to be involved in meaningful, productive activities. Their resounding plea is to have their personhood embraced instead of negated.
Show less - Date Issued
- 2011
- Identifier
- CFE0003614, ucf:48867
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0003614
- Title
- STATISTICAL ANALYSIS OF DEPRESSION AND SOCIAL SUPPORT CHANGE IN ARAB IMMIGRANT WOMEN IN USA.
- Creator
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Blbas, Hazhar, Uddin, Nizam, Nickerson, David, Aroian, Karen, University of Central Florida
- Abstract / Description
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Arab Muslim immigrant women encounter many stressors and are at risk for depression. Social supports from husbands, family and friends are generally considered mitigating resources for depression. However, changes in social support over time and the effects of such supports on depression at a future time period have not been fully addressed in the literature This thesis investigated the relationship between demographic characteristics, changes in social support, and depression in Arab Muslim...
Show moreArab Muslim immigrant women encounter many stressors and are at risk for depression. Social supports from husbands, family and friends are generally considered mitigating resources for depression. However, changes in social support over time and the effects of such supports on depression at a future time period have not been fully addressed in the literature This thesis investigated the relationship between demographic characteristics, changes in social support, and depression in Arab Muslim immigrant women to the USA. A sample of 454 married Arab Muslim immigrant women provided demographic data, scores on social support variables and depression at three time periods approximately six months apart. Various statistical techniques at our disposal such as boxplots, response curves, descriptive statistics, ANOVA and ANCOVA, simple and multiple linear regressions have been used to see how various factors and variables are associated with changes in social support from husband, extended family and friend over time. Simple and multiple regression analyses are carried out to see if any variable observed at the time of first survey can be used to predict depression at a future time. Social support from husband and friend, husband's employment status and education, and depression at time one are found to be significantly associated with depression at time three. Finally, logistic regression analysis conducted for a binary depression outcome variable indicated that lower total social support and higher depression score of survey participants at the time of first survey increase their probability of being depressed at the time of third survey.
Show less - Date Issued
- 2014
- Identifier
- CFE0005133, ucf:50676
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0005133
- Title
- Rapid Response Teams versus Critical Care Outreach Teams: Unplanned Escalations in Care and Associated Outcomes.
- Creator
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Danesh, Valerie, Neff, Donna, Aroian, Karen, Andrews, Diane, Unruh, Lynn, University of Central Florida
- Abstract / Description
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The incidence of unplanned escalations during hospitalization is undocumented, but estimates may be as high as 1.2 million occurrences per year in the United States. Rapid Response Teams (RRT) were developed for the early recognition and treatment of deteriorating patients to deliver time-sensitive interventions, but evidence related to optimal activation criteria and structure is limited. The purpose of this study is to determine if an Early Warning Score-based Critical Care Outreach (CCO)...
Show moreThe incidence of unplanned escalations during hospitalization is undocumented, but estimates may be as high as 1.2 million occurrences per year in the United States. Rapid Response Teams (RRT) were developed for the early recognition and treatment of deteriorating patients to deliver time-sensitive interventions, but evidence related to optimal activation criteria and structure is limited. The purpose of this study is to determine if an Early Warning Score-based Critical Care Outreach (CCO) model is related to the frequency of unplanned intra-hospital escalations in care compared to a RRT system based on staff nurse identification of vital sign derangements and physical assessments. The RRT model, in which staff nurses identified vital sign derangements to active the system, was compared with the addition of a CCO model, in which rapid response nurses activated the system based on Early Warning Score line graphs of patient condition over time. Logistic regressions were used to examine retrospective data from administrative datasets at a 237-bed community non-teaching hospital during two periods: 1) baseline period, RRT model (n=5,875) (Phase 1: October 1, 2010 (-) March 31, 2011), and; 2) intervention period, RRT/CCO model (n=6,273). (Phase 2: October 1, 2011 (-) March 31, 2012). The strongest predictor of unplanned escalations to the Intensive Care Unit was the type of rapid response system model. Unplanned ICU transfers were 1.4 times more likely to occur during the Phase 1 RRT period. In contrast, the type of rapid response model was not a significant predictor when all unplanned escalations (any type) were grouped together (medical-surgical-to-intermediate, medical-surgical-to-ICU and intermediate-to-ICU). This is the first study to report a relationship between unplanned escalations and different rapid response models. Based on the findings of fewer unplanned ICU transfers in the setting of a CCO model, health services researchers and clinicians should consider using automated Early Warning score graphs for hospital-wide surveillance of patient condition as a safety strategy.
Show less - Date Issued
- 2015
- Identifier
- CFE0006212, ucf:51093
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0006212
- Title
- The Early Postpartum Experience of Previously Infertile Mothers.
- Creator
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Ladores, Sigrid, Aroian, Karen, Chase, Susan, Norris, Anne, Renk, Kimberly, University of Central Florida
- Abstract / Description
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The lived experiences of previously infertile mothers in the early postpartum period have not been previously studied. The purpose of the research was to explore the experiences of previously infertile mothers during their early postpartum period.Colaizzi's (1978) approach to descriptive phenomenological inquiry was used to analyze the interview data obtained from twelve first-time, previously infertile mothers. These new mothers, aged 27 to 43 years, were interviewed twice. The first...
Show moreThe lived experiences of previously infertile mothers in the early postpartum period have not been previously studied. The purpose of the research was to explore the experiences of previously infertile mothers during their early postpartum period.Colaizzi's (1978) approach to descriptive phenomenological inquiry was used to analyze the interview data obtained from twelve first-time, previously infertile mothers. These new mothers, aged 27 to 43 years, were interviewed twice. The first interview focused on eliciting descriptions of new motherhood in the early postpartum period after overcoming infertility. The second interview validated the interpretations from the first interview and provided additional information and reflection. Two main themes emerged that described the early postpartum experience of first-time, previously infertile mothers: 1) Lingering Identity as Infertile; and 2) Gratitude for the Gift of Motherhood. Participants reported that their lingering identity as infertile and immense gratitude for the gift of motherhood propelled them to establish unrealistic expectations to be the perfect mother. When they were unable to live up to being the perfect mother, they censored their feelings of inadequacy, guilt, and shame. Findings from this study sensitize healthcare providers to the difficulties faced by previously infertile women during their transition to motherhood.
Show less - Date Issued
- 2013
- Identifier
- CFE0005365, ucf:50489
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0005365
- Title
- Helping Mothers Defend their Decision to Breastfeed.
- Creator
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Natoli, Kandis, Aroian, Karen, Covelli, Maureen, Quelly, Susan, Uddin, Nizam, Miller, Ann, University of Central Florida
- Abstract / Description
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The United States has established breastfeeding as an important health indicator within the Healthy People agenda. Healthy People target goals for breastfeeding initiation, duration, and exclusivity remain unmet. The US Surgeon General's Office reports that lack of knowledge and widespread misinformation about breastfeeding are barriers to meeting Healthy People goals. Breastfeeding mothers are vulnerable to messages that cast doubt on their ability to breastfeed. Very little research has...
Show moreThe United States has established breastfeeding as an important health indicator within the Healthy People agenda. Healthy People target goals for breastfeeding initiation, duration, and exclusivity remain unmet. The US Surgeon General's Office reports that lack of knowledge and widespread misinformation about breastfeeding are barriers to meeting Healthy People goals. Breastfeeding mothers are vulnerable to messages that cast doubt on their ability to breastfeed. Very little research has examined specific approaches to help people resist negative messages about health beliefs and behaviors. The objective of this quasi-experimental study was to test an intervention designed to help mothers defend their breastfeeding decisions and resist influences that attempted to persuade them to give formula to their babies. Women attending prenatal breastfeeding classes were recruited and assigned to comparison and intervention groups. The intervention was a board game based on McGuire's inoculation theory of resistance to influence. Controlling for intention to breastfed, intervention and comparison groups were examined for differences in maternal self-efficacy to resist persuasion to give formula and breastfeeding rates for initiation, duration, and exclusivity. Data analyses consisted of analysis of covariance and logistic regression. There was no significant difference between comparison and intervention groups, both groups had high self-efficacy to resist giving formula to their babies; nor were there significant differences regarding breastfeeding initiation, duration and exclusivity. The lack of significant differences may have been influenced by ceiling effects in all of the breastfeeding variables, possibly due to the high socioeconomic level of the sample. The intervention may have worked better in women who were more prone to dissuasive influence, such as those with lower education.
Show less - Date Issued
- 2015
- Identifier
- CFE0005981, ucf:50764
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0005981
- Title
- Perceived readiness to transition to adult health care for youth with cystic fibrosis and congruence with their caregivers' views.
- Creator
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Lapp, Valerie, Chase, Susan, Aroian, Karen, Weiss, Josie, Yan, Xin, Robinson, Patricia, University of Central Florida
- Abstract / Description
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Youth with cystic fibrosis must gradually assume considerable self-care management skills in order to optimize longevity and quality of life, and healthcare providers and caregivers play a role in youth gradually assuming these skills. The purpose of this study was to determine how youth with cystic fibrosis perceive their self-care management skills required for transition to adult healthcare, the relationship between age and skill acquisition, youth and caregiver congruence on perceived...
Show moreYouth with cystic fibrosis must gradually assume considerable self-care management skills in order to optimize longevity and quality of life, and healthcare providers and caregivers play a role in youth gradually assuming these skills. The purpose of this study was to determine how youth with cystic fibrosis perceive their self-care management skills required for transition to adult healthcare, the relationship between age and skill acquisition, youth and caregiver congruence on perceived transition readiness, and frequency of transition discussion with provider. In this descriptive, correlational, cross-sectional design, 58 youth ages 14-22 rated their skill ability in managing cystic fibrosis using the Transition Readiness Assessment Questionnaire (TRAQ) during visits to the cystic fibrosis clinic. Using an adapted version of the questionnaire, the TRAQ-C, 52 caregivers also rated youth readiness to transition to determine congruence in self-care management ability. Five simple regressions were calculated to determine age effects for the self-care management skills. Independent t-tests were used to compare mean scores of youth and caregiver perceptions of self-care management skills. Age predicted youth perception of readiness for self-care management skills. Youth scored significantly higher than their caregivers did in perception of self-care skill management. Study findings suggest that preparation for transition to adult care should begin at an earlier age to prepare youth to assume self-care. Including transition discussion with youth and caregiver assessments using questionnaires such as the TRAQ and TRAQ-C may guide learning of skills and timing of transition to adult health care.
Show less - Date Issued
- 2016
- Identifier
- CFE0006133, ucf:51185
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0006133
- Title
- Impact of Cancer-Specific Advance Care Planning on Anxiety, Decisional Conflict, and Surrogate Understanding of Patient Treatment Preferences.
- Creator
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Waser, Lynn, Aroian, Karen, Chase, Susan, Norris, Anne, Loerzel, Victoria, Buckey, Julia, University of Central Florida
- Abstract / Description
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ABSTRACTPatients with life-limiting cancer and their families face unique challenges that interfere with their ability to make decisions or adequately express their health care preferences about end of life (EOL) treatment. As a result, patients at EOL often receive aggressive unwanted treatment that nationally costs billions of dollars and results in surrogate distress about not honoring patient wishes. Respecting Choices(&)#174; DS-ACP is a disease-specific Advance Care Planning (ACP)...
Show moreABSTRACTPatients with life-limiting cancer and their families face unique challenges that interfere with their ability to make decisions or adequately express their health care preferences about end of life (EOL) treatment. As a result, patients at EOL often receive aggressive unwanted treatment that nationally costs billions of dollars and results in surrogate distress about not honoring patient wishes. Respecting Choices(&)#174; DS-ACP is a disease-specific Advance Care Planning (ACP) intervention that is designed to overcome barriers associated with ACP and potentially decrease the incidence of unwanted, overly aggressive treatments at EOL. The intervention is delivered to patient-surrogate dyads by a trained facilitator who provides an opportunity for patients to identify values and goals that support their EOL choices and communicate these values and goals to their surrogates before they are in a medical crisis. Although Respecting Choices(&)#174; DS-ACP has been effective with other populations, it has not been evaluated for patients with life-limiting cancer. Thus, the purpose of this study was to evaluate the Respecting Choices(&)#174; DS-ACP intervention with patients with life-limiting cancer to determine if the intervention increases patient-surrogate congruence about the patient's EOL wishes and reduces decisional conflict without causing anxiety.Study design was a Phase I clinical trial. A volunteer sample of 15 patients with a diagnosis of life limiting cancer and their matched surrogates participated in the study. The Statement of Treatment Preferences for Life-Limiting Cancer Form, the Spielberger State-anxiety Scale Form Y-1 (STAI) and the Decisional Conflict Scale (DCS) were administered pre- and post-intervention. The Quality of Communication about End of Life Care Form was administered at post test. Descriptive statistics were used to describe the sample. McNemar Chi-square and Binomial tests were conducted to investigate whether the intervention increased congruence for five different situations on the Statement of Treatment Preferences for Life-Limiting Cancer Form. The Zar's Multiple Comparison Test of Differences was conducted to investigate the proportion of congruence observed across the five situations. A paired-sample t test was conducted to evaluate post-intervention changes in anxiety (STAI) and decisional conflict (DCS). Frequencies and percentages were conducted for the five items on the Quality of Communication about End of Life Care Form to evaluate patients' and surrogates' satisfaction with the intervention. Anecdotal comments about timing were content analyzed and summarized.Congruence between patients and surrogates improved significantly in all five situations (range of p =.001 to .031), decisional conflict lessened significantly (t (14) =4.49, p (<) .001), and anxiety did not change (t (14) = 1.75, p = .102) pre- and post-intervention. Participants reported satisfaction with the intervention, including its delivery and timing.Findings from this study provide guidance on how to assist patients with life limiting cancer and their surrogates with EOL decision making. Study findings also support making the Respecting Choices ACP intervention part of usual care for patients with life limiting cancer and timing the intervention so that it is delivered before a medical crisis occurs. The lack of change in post-intervention anxiety scores suggests that ACP does not add to patient distress when ACP is conducted by a trained facilitator. This finding can be used to persuade health professionals to refer their patients for ACP. Additional research is needed to determine if increased patient-surrogate congruence leads to patients' wishes being followed and reduces surrogate decisional conflict and distress at EOL. Future research is also needed to determine if the Respecting Choices DS-ACP intervention is equally effective with racial and ethnic groups whose reluctance to engage in EOL discussion has been documented in the literature or if the intervention needs to be culturally adapted.
Show less - Date Issued
- 2012
- Identifier
- CFE0004615, ucf:49944
- Format
- Document (PDF)
- PURL
- http://purl.flvc.org/ucf/fd/CFE0004615
