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CAREGIVER BURDEN AND COPING RESPONSES FOR FEMALES WHO ARE THE PRIMARY CAREGIVER FOR A FAMILY MEMBER LIVING WITH HIV/AIDS IN KENYA
Title
CAREGIVER BURDEN AND COPING RESPONSES FOR FEMALES WHO ARE THE PRIMARY CAREGIVER FOR A FAMILY MEMBER LIVING WITH HIV/AIDS IN KENYA.
Creator
Kimemia, Veronica, Daire, Andrew, University of Central Florida
Abstract / Description
Caring for a family member who is ill can be a draining experience (Cooper et al., 2006; Daire, 2002; Zarit et al, 1980). Providing care for a family member that is living with HIV/AIDS is potentially even more stressful because of social meanings associated with HIV/AIDS infection (Stajduhar, 1998) and the contagious nature of the HIV virus (Powell-Cope & Brown, 1992). Research indicates that most caregivers are female (Bunting, 2001; Songwathana, 2000). In Africa women bear the brunt of the...
Show moreCaring for a family member who is ill can be a draining experience (Cooper et al., 2006; Daire, 2002; Zarit et al, 1980). Providing care for a family member that is living with HIV/AIDS is potentially even more stressful because of social meanings associated with HIV/AIDS infection (Stajduhar, 1998) and the contagious nature of the HIV virus (Powell-Cope & Brown, 1992). Research indicates that most caregivers are female (Bunting, 2001; Songwathana, 2000). In Africa women bear the brunt of the burden of providing care for family members who are living with HIV/AIDS (Mushonga, 2001; Olenja, 1999). This study examined coping factors and caregiver burden among female caregivers (N=116) of a family member living with HIV/AIDS in Kenya. Coping factors were derived from a principal components factor analysis of the fourteen scales on the Brief Cope (Carver, 1997). Caregiver burden was measured using the Zarit Caregiver Burden Inventory. Multiple regression analysis was used to investigate the relationships between caregiver burden and coping factors. Post–hoc multiple regression analyses further investigated the relationship between caregiver burden and caregiver demographic characteristics. The relationship between caregiver burden and care recipient characteristics was also investigated. The principle components factor analysis of the Brief Cope yielded five coping factors that were labeled: Social support, Hope, Acceptance, Planning, and Disposition. The regression analysis that was conducted to investigate the relationships between these five coping factors and caregiver burden indicated a significant inverse relationship between Hope and caregiver burden. The post-hoc analyses investigating the relationship between various caregiver and care recipient characteristics indicated a significant relationship between the caregiver's age and caregiver burden, and education level and caregiver burden. An increase in age correlated with a decrease in caregiver burden. An increase in education level correlated with reduced caregiver burden. Implications of the findings for research and practice are discussed.
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Date Issued
2006
Identifier
CFE0001012, ucf:46832
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0001012
Young Adult Development and Caregiving: Disposition and Involvement in Care
Title
Young Adult Development and Caregiving: Disposition and Involvement in Care.
Creator
James, Nicholas, Paulson, Daniel, Dvorak, Robert, Wharton, Tracy, University of Central Florida
Abstract / Description
Caregivers are a diverse group of individuals with a variety of backgrounds and roles; however, research has widely overlooked young adults in this population. This study investigated young adult caregiver circumstance, burden, and use of support services with the purpose of improving future caregiving research and interventions. Study 1 compared burden and circumstance among young, middle aged, and older adult caregivers (N = 285) in addition to developmental indicators among young adults...
Show moreCaregivers are a diverse group of individuals with a variety of backgrounds and roles; however, research has widely overlooked young adults in this population. This study investigated young adult caregiver circumstance, burden, and use of support services with the purpose of improving future caregiving research and interventions. Study 1 compared burden and circumstance among young, middle aged, and older adult caregivers (N = 285) in addition to developmental indicators among young adults caregiver and demographically matched non-caregiver peers (n = 225). Study 2 surveyed caregivers from each age group (N = 151) on barriers to care, treatment preferences, and interest in services. Results from study 1 indicated that young adult caregivers adopted similar caregiving roles and factors linked to burden; however, they reported additional stressors such as higher rates of childcare and commuting to provide care. Compared to demographically matched-peers, young adult caregivers were more likely to work part-time and earn a substantially lower yearly income. Study 2 replicated original findings and revealed that young adult caregivers endorsed elevated attitudinal barriers to care and are the least likely age group to speak to physicians about caregiving. Overall, findings reveal the similarity in caregiving role that young adults take on, as well as several unique burden factors. Caregivers across age groups disclosed moderate treatment expectancy for support services, and all reported greater interest in online-based treatment. Young adult caregivers were more likely to take on responsibilities such as childrearing and employment, thus impacting their available time and financial support. However, these findings do not explain the overwhelming lack of young adult caregivers in research. Future studies should re-evaluate sampling methods and inclusion criteria, or explore more accessible means of intervention, such as web-based services.
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Date Issued
2018
Identifier
CFE0007018, ucf:52027
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007018
THE ASSOCIATION OF ATTACHMENT STYLE AND PERCEPTIONS OF CAREGIVER EXPERIENCE
Title
THE ASSOCIATION OF ATTACHMENT STYLE AND PERCEPTIONS OF CAREGIVER EXPERIENCE.
Creator
Luther, Kandace, Paulson, Daniel, University of Central Florida
Abstract / Description
This research examines caregiver experiences as they relate to attachment style. The overarching hypothesis is that perceptions of the caregiver role differ depending on the degree of avoidance and anxiousness in the caregiver's attachment style. Caregiver response was measured in the areas of filial obligation, work reduction, perceived control, caregiver burden, depressive symptomatology, and preparedness for caregiving. The final sample consisted of 150 caregivers who identified as the...
Show moreThis research examines caregiver experiences as they relate to attachment style. The overarching hypothesis is that perceptions of the caregiver role differ depending on the degree of avoidance and anxiousness in the caregiver's attachment style. Caregiver response was measured in the areas of filial obligation, work reduction, perceived control, caregiver burden, depressive symptomatology, and preparedness for caregiving. The final sample consisted of 150 caregivers who identified as the primary caregiver for a parent over the age of 65. This sample was recruited using Mechanical Turk, an online survey distribution tool. The survey was created online with Qualtrics software. Data were analyzed using SPSS software, and procedures primarily focused on correlational and descriptive statistics. The results revealed several significant correlations between attachment style and caregiver burden as well as depression, supporting the hypothesis that attachment style is associated with differences in perception of the caregiver experience. This research is motivated by the increasingly urgent need for caregiver support through financial aid, counseling services, and cohesive healthcare options.
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Date Issued
2014
Identifier
CFH0004705, ucf:45408
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004705