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CAREGIVER BURDEN AND COPING RESPONSES FOR FEMALES WHO ARE THE PRIMARY CAREGIVER FOR A FAMILY MEMBER LIVING WITH HIV/AIDS IN KENYA
Title
CAREGIVER BURDEN AND COPING RESPONSES FOR FEMALES WHO ARE THE PRIMARY CAREGIVER FOR A FAMILY MEMBER LIVING WITH HIV/AIDS IN KENYA.
Creator
Kimemia, Veronica, Daire, Andrew, University of Central Florida
Abstract / Description
Caring for a family member who is ill can be a draining experience (Cooper et al., 2006; Daire, 2002; Zarit et al, 1980). Providing care for a family member that is living with HIV/AIDS is potentially even more stressful because of social meanings associated with HIV/AIDS infection (Stajduhar, 1998) and the contagious nature of the HIV virus (Powell-Cope & Brown, 1992). Research indicates that most caregivers are female (Bunting, 2001; Songwathana, 2000). In Africa women bear the brunt of the...
Show moreCaring for a family member who is ill can be a draining experience (Cooper et al., 2006; Daire, 2002; Zarit et al, 1980). Providing care for a family member that is living with HIV/AIDS is potentially even more stressful because of social meanings associated with HIV/AIDS infection (Stajduhar, 1998) and the contagious nature of the HIV virus (Powell-Cope & Brown, 1992). Research indicates that most caregivers are female (Bunting, 2001; Songwathana, 2000). In Africa women bear the brunt of the burden of providing care for family members who are living with HIV/AIDS (Mushonga, 2001; Olenja, 1999). This study examined coping factors and caregiver burden among female caregivers (N=116) of a family member living with HIV/AIDS in Kenya. Coping factors were derived from a principal components factor analysis of the fourteen scales on the Brief Cope (Carver, 1997). Caregiver burden was measured using the Zarit Caregiver Burden Inventory. Multiple regression analysis was used to investigate the relationships between caregiver burden and coping factors. Post–hoc multiple regression analyses further investigated the relationship between caregiver burden and caregiver demographic characteristics. The relationship between caregiver burden and care recipient characteristics was also investigated. The principle components factor analysis of the Brief Cope yielded five coping factors that were labeled: Social support, Hope, Acceptance, Planning, and Disposition. The regression analysis that was conducted to investigate the relationships between these five coping factors and caregiver burden indicated a significant inverse relationship between Hope and caregiver burden. The post-hoc analyses investigating the relationship between various caregiver and care recipient characteristics indicated a significant relationship between the caregiver's age and caregiver burden, and education level and caregiver burden. An increase in age correlated with a decrease in caregiver burden. An increase in education level correlated with reduced caregiver burden. Implications of the findings for research and practice are discussed.
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Date Issued
2006
Identifier
CFE0001012, ucf:46832
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0001012
THE EFFICACY OF A 6-WEEK EVIDENCE-BASED SUPPORT GROUP FOR CAREGIVERS OF DEMENTIA IN A PRIMARY CARE SETTING
Title
THE EFFICACY OF A 6-WEEK EVIDENCE-BASED SUPPORT GROUP FOR CAREGIVERS OF DEMENTIA IN A PRIMARY CARE SETTING.
Creator
Shah, Mona, Paulson, Daniel, Cassisi, Jeffrey, Sims, Valerie, University of Central Florida
Abstract / Description
More than 16 million Americans provide unpaid care for those with Alzheimer's disease and other dementias. Extant literature has well documented the increased risk for physical, emotional, social and financial burden associated with caregiving. While intensive support groups may be well-suited to caregiver needs, they are often difficult to implement given financial, personnel and resource constraints. Thus, the purpose of this study is to examine the efficacy of a theoretically-based, 6-week...
Show moreMore than 16 million Americans provide unpaid care for those with Alzheimer's disease and other dementias. Extant literature has well documented the increased risk for physical, emotional, social and financial burden associated with caregiving. While intensive support groups may be well-suited to caregiver needs, they are often difficult to implement given financial, personnel and resource constraints. Thus, the purpose of this study is to examine the efficacy of a theoretically-based, 6-week caregiver support group in a community primary care setting. The group focuses on self-care, behavior management techniques and interdisciplinary caregiver resources. A total of 22 participants completed the active caregiver support group and they were compared to 19 control participants who participated in community caregiver support groups. Participants on average were in their mid-60s, mostly female and Caucasian, and identified as either the care recipient's child or spouse. All participants completed self-report measures related to demographic information, caregiver preparedness (Caregiver Preparedness Scale), caregiver strain (Caregiver Strain Index), caregiver depressive symptoms (CESD-10), and care recipient's neuropsychiatric symptoms (NPI-Q), at baseline and at 6-weeks. Participants in the active caregiver support group also completed a satisfaction survey. Results from two-way mixed ANCOVA analyses revealed a time by group interaction effect for caregiver preparedness, such that caregivers in the active group demonstrated a significant increase in mean caregiver preparedness scores while scores remained invariant for the control group. No significant main effects nor group by time interaction effects were found for caregiver strain, caregiver depressive symptoms and caregiver distress related to neuropsychiatric symptoms. Participants in the active caregiver support group rated being largely satisfied with the group. Results suggest that this 6-week caregiver support group may be a promising caregiver intervention that can be readily implemented and accessible in primary care clinics. Further research with larger sample sizes is recommended.
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Date Issued
2018
Identifier
CFE0007370, ucf:52098
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007370
THE PSYCHOSOCIAL EFFECTS OF APHASIA ON THE CAREGIVER
Title
THE PSYCHOSOCIAL EFFECTS OF APHASIA ON THE CAREGIVER.
Creator
Ferrara, Lauren A, Whiteside, Janet D., Wharton, Tracy; Zraick, Richard, University of Central Florida
Abstract / Description
Studies have investigated the physical and emotional wellbeing of family members and spouses who care for persons with stroke (Bakas, et al. 2006). Literature shows burden of care is high in role reversal and depression is frequent. Variables that affect the caregiver burden with persons with aphasia (PWA) have not been identified prior to this study. Results from caregiver interviews found six themes, some which have not been identified prior, such as feelings of optimism.
Date Issued
2017
Identifier
CFH2000175, ucf:45968
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000175
Development of filial obligation in young adults: An examination of crisis and lifespan theory
Title
Development of filial obligation in young adults: An examination of crisis and lifespan theory.
Creator
Bassett, Rachel, Paulson, Daniel, Wharton, Tracy, Renk, Kimberly, University of Central Florida
Abstract / Description
Formal care institutions are unable to meet care demands. As a result, informal caregivers (friends, family, neighbors) are called upon to fulfill this need. Adult children make up the majority of these informal caregivers. Adult children vary with respect to whether or not they provide care, and the amount of care provided. Filial obligation and attachment are positive predictors of these care behaviors. A better understanding of how these factors emerge and invoke caregiving behaviors is...
Show moreFormal care institutions are unable to meet care demands. As a result, informal caregivers (friends, family, neighbors) are called upon to fulfill this need. Adult children make up the majority of these informal caregivers. Adult children vary with respect to whether or not they provide care, and the amount of care provided. Filial obligation and attachment are positive predictors of these care behaviors. A better understanding of how these factors emerge and invoke caregiving behaviors is crucial. The primary hypothesis of this study was that anxiety attachment dimension score would positively relate to baseline filial obligation, and that avoid attachment dimension scores would negatively relate to filial obligation at baseline. The second hypothesis was that participants randomized to the experimental group (filial challenge task, requiring administration of a living will to their parents) would experience greater change in filial obligation pre- to post-0task than would those randomized to the control group (autobiographical questionnaire). The third hypothesis was that anxious and avoid attachment dimension scores would moderate the (filial obligation) response to the filial challenge task (living will), whereby those with higher anxious attachment dimension scores would experience greater increases in filial obligation and those with higher avoid attachment dimension scores will experience greater decreases in filial obligation. Overall, hypotheses were not supported, though post-hoc analyses suggest an empirical basis for future research. Empirical and theoretical implications of these findings are discussed. Future work may examine complementary experimental paradigms for studying the development of filial responsibility.
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Date Issued
2019
Identifier
CFE0007593, ucf:52552
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007593
USE OF A MUSIC AND MEMORY PROGRAM BY CAREGIVERS OF PERSONS WITH DEMENTIA
Title
USE OF A MUSIC AND MEMORY PROGRAM BY CAREGIVERS OF PERSONS WITH DEMENTIA.
Creator
Mendez Campos, Barbara, Gammonley, Denise, University of Central Florida
Abstract / Description
Although use of personal music devices by persons with dementia and their caregivers is now widespread, there is limited literature concerning music and memory's effects on caregivers for persons with dementia. Caregivers were provided an iPod by two respite agencies and were encouraged to use it with their care recipient. A mailed survey of 50 caregivers who received an IPod explored: (a) associations between use of an iPod and caregiver self-efficacy, burden, and care recipient functional...
Show moreAlthough use of personal music devices by persons with dementia and their caregivers is now widespread, there is limited literature concerning music and memory's effects on caregivers for persons with dementia. Caregivers were provided an iPod by two respite agencies and were encouraged to use it with their care recipient. A mailed survey of 50 caregivers who received an IPod explored: (a) associations between use of an iPod and caregiver self-efficacy, burden, and care recipient functional abilities, and; (b) if the method of presenting the music playlist was associated with use of the iPod. Associations were examined for 10 complete surveys returned by caregiver respondents using non-parametric methods. There was no relationship between self-efficacy, burden, functional abilities and use of the iPod. A content analysis was conducted of caregiver open-ended responses to questions about factors associated with use of the device. Mean caregiver age in this study was 75 years of age, care recipient mean was 79 years of age. On average caregivers used the IPods 2-3 times per month. Scores on caregiver burden measured by the 12-item Zarit Burden Interview had a mean of 12.5 which suggests a moderate level of burden. Emergent themes from caregiver open-ended responses about using the device revealed care recipients as primary users, use mostly in the evening, and in response to caregiving tasks or difficult care recipient behaviors. Keywords: Music and memory, dementia caregiver burden, self-efficacy
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Date Issued
2017
Identifier
CFH2000181, ucf:46046
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000181
RELATIONSHIP BETWEEN SUPERVISOR LOCUS OF CONTROL AND EMPLOYEE SATISFACTION IN A RESIDENTIAL CARE FACILITY
Title
RELATIONSHIP BETWEEN SUPERVISOR LOCUS OF CONTROL AND EMPLOYEE SATISFACTION IN A RESIDENTIAL CARE FACILITY.
Creator
Nowotniak, Patricia, House, Jess, University of Central Florida
Abstract / Description
The goal of this research was to identify factors that may contribute to employee satisfaction. Review of the literature revealed potential factors influencing employee satisfaction, such as locus of control, difficulty of the work itself, and working conditions. These literature findings guided this research, to establish if a relationship existed between employee satisfaction of caregivers employed in a developmental institution and locus of control. Supervisors and their employees were...
Show moreThe goal of this research was to identify factors that may contribute to employee satisfaction. Review of the literature revealed potential factors influencing employee satisfaction, such as locus of control, difficulty of the work itself, and working conditions. These literature findings guided this research, to establish if a relationship existed between employee satisfaction of caregivers employed in a developmental institution and locus of control. Supervisors and their employees were given a locus of control scale; employees were additionally given a job satisfaction survey. The relationship between the supervisors' locus of control and employee satisfaction was evaluated as well as the relationship between the employees' locus of control and their job satisfaction. The resignation rate and rate of transfers within the agency were established for each of the supervisors and were assessed in relationship to the locus of control of the supervisors. Factors such as the level of physical exertion required by employees in their job duties and the level of behavioral intervention in their homes were assessed as they related to their own job satisfaction, their transfers, and their rates of resignations. Findings from the correlation procedures revealed no relationship to a statistically significant degree between the locus of control of supervisors and their employees' job satisfaction. The locus of control of supervisors was also not found to be statistically significantly correlated with the numbers of employee transfers within the organization; however, a relationship between the locus of control of supervisors and employee resignations was established. The supervisors who had an internal locus of control had fewer resignations. A statistically significant negative relationship was also found between employees' job satisfaction and their own locus of control. The employees who had an internal locus of control reported higher job satisfaction. Although there was no relationship established between the employees' job satisfaction and type of exertion, there was a statistically significant negative relationship between behavioral exertion and requests for inter-agency transfers and resignations, and a positive correlation between physical exertion and number of resignations. Results of this study suggest that locus of control is an impacting variable for job satisfaction and turnover. Combining attribution training with effective management practices with all employees may increase employee satisfaction. Findings from this research suggest a need for a better refinement of the theoretical construct of job satisfaction and a need to evaluate the effectiveness of the instrumentation currently used to determine job satisfaction.
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Date Issued
2005
Identifier
CFE0000558, ucf:46417
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0000558
EXPERIENCES OF HOSPITALIZED PATIENTS WITH DEMENTIA
Title
EXPERIENCES OF HOSPITALIZED PATIENTS WITH DEMENTIA.
Creator
Bainbridge, Samantha, LaManna, Jacqueline, University of Central Florida
Abstract / Description
People with dementia are hospitalized for a variety of reasons. The combination of dementia with additional health conditions creates a unique challenge to caregivers in acute care settings. There is a dearth of information available to provide guidance to the nursing staff caring for these patients. This integrated review of the literature examined the experiences of hospitalization from the perspective of the older adult with dementia, the family caregiver, and the patient care staff....
Show morePeople with dementia are hospitalized for a variety of reasons. The combination of dementia with additional health conditions creates a unique challenge to caregivers in acute care settings. There is a dearth of information available to provide guidance to the nursing staff caring for these patients. This integrated review of the literature examined the experiences of hospitalization from the perspective of the older adult with dementia, the family caregiver, and the patient care staff. Results showed a limited body of literature that addressed hospital experiences of people with dementia and those of family and professional caregivers. Additionally, few studies addressing this topic have been conducted in the United States. The primary finding from this study is that better communication is needed between nursing staff, patients, and their family caregivers. Nurses should carry out detailed assessments of cognition and pain in all elderly patients, and strive to provide appropriate palliative and end-of-life care. Dementia- specific training for all staff members may help to promote a better understanding of patients with dementia. Lastly, further research into the experiences of hospitalized dementia patients is needed, with a focus on acute care settings within the United States.
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Date Issued
2012
Identifier
CFH0004146, ucf:44855
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004146
Caregiver-proxy and individual with aphasia self-report agreement on the modified perceived stress scale and mutuality scale
Title
Caregiver-proxy and individual with aphasia self-report agreement on the modified perceived stress scale and mutuality scale.
Creator
Hernandez, Nelson, Wilson, Lauren Bislick, Engelhoven, Amy, Hunting Pompon, Rebecca, Troche, Joshua, University of Central Florida
Abstract / Description
The level of agreement proxy-caregivers have with individuals with aphasia (IWAs) on a measure of perceived stress has yet to be systematically investigated. According to the extant literature, there is less agreement on psychosocial domains between proxy-caregivers and IWAs. In addition, high levels of mutuality have been strongly associated with low levels of stress in stroke survivors; however, these studies are not been specific to IWAs. The proposed study sought to examine the degree of...
Show moreThe level of agreement proxy-caregivers have with individuals with aphasia (IWAs) on a measure of perceived stress has yet to be systematically investigated. According to the extant literature, there is less agreement on psychosocial domains between proxy-caregivers and IWAs. In addition, high levels of mutuality have been strongly associated with low levels of stress in stroke survivors; however, these studies are not been specific to IWAs. The proposed study sought to examine the degree of agreement between proxy-caregiver reports and IWAs' perceived stress using a modified stress scale specifically for IWAs. This study also examined the relationship between perceived stress and mutuality of the relationship between the caregiver and IWAs. The modified Perceived Stress Scale (mPSS), a proxy version of the mPSS, and the Mutuality Scale (MS) were administered to 12 dyads. An independent sample t-test was conducted to determine if there were significant differences in perceived stress and mutuality as reported by the caregiver, proxy-caregiver and IWA. A Pearson correlation was performed to determine the level of agreement across questionnaires. Results show a moderate correlation on mPSS ratings between the proxy-caregiver and IWA. On average, proxy ratings on the mPSS were significantly higher than reports from IWAs. There was strong agreement on mutuality among the dyads and a moderate correlation between mutuality agreement and proxy agreement. Finally, there was a moderate correlation between the caregiver's mPSS score and increased disagreement between the proxy-caregiver and the IWA's mPSS score. These findings suggest a moderate agreement on perceived stress among caregivers and IWAs. Differences in agreement on perceived stress for proxy-caregiver and IWAs were minimized when perceived mutuality between the dyads were high. Further, caregivers were more likely to overestimate the perceived stress of IWAs when their own mPSS ratings were high. Study limitations and future directions are also discussed.
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Date Issued
2019
Identifier
CFE0007652, ucf:52464
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007652
Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder
Title
Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder.
Creator
Turnage, Dawn, Conner, Norma, Edwards, Joellen, Weiss, Josie, Hinojosa, Melanie, Uddin, Nizam, University of Central Florida
Abstract / Description
Purpose: Parental caregivers of children with Autism Spectrum Disorder (ASD) are exposed to stressors associated with the daily care of raising a child with a developmental disability, which may negatively impact parental quality of life (QOL). The specific aim of this study was to examine the relationships between demographic factors, stress, and coping among parental caregivers of children with ASD to determine whether predictors of QOL exist. Methodology: This study was descriptive, and an...
Show morePurpose: Parental caregivers of children with Autism Spectrum Disorder (ASD) are exposed to stressors associated with the daily care of raising a child with a developmental disability, which may negatively impact parental quality of life (QOL). The specific aim of this study was to examine the relationships between demographic factors, stress, and coping among parental caregivers of children with ASD to determine whether predictors of QOL exist. Methodology: This study was descriptive, and an electronic survey was distributed to Florida parents of children, age 3-21 years old, diagnosed with ASD. The survey measured parentreported demographic factors, severity of the diagnosis of ASD in the child, parental stress, coping, and QOL. Data were analyzed using multiple regression. Findings: Study findings suggest that, in parental caregivers of children with ASD in Florida (N = 152) daily stressors, coping self-efficacy, and household income were predictors for physical QOL; daily stressors and coping self-efficacy were predictors of psychological QOL, and coping-self efficacy, household income, and severity of the diagnosis of the child were predictors for environmental QOL. Conclusion: Coping self-efficacy and improved income can positively improve QOL, while severity of the diagnosis of ASD and daily stressors can negatively impact QOL. Clinically, nurses with a better understanding of the parental stress and coping in parents of children with ASD can better recommend tailored resources to improve QOL. Policies to support financial help for families may also improve QOL. Future research should focus on interventions to improve coping-self efficacy.
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Date Issued
2019
Identifier
CFE0007737, ucf:52412
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007737
A Single Case Analysis of the Impact of Caregiver-Student Collaborative Learning on an Urban Community
Title
A Single Case Analysis of the Impact of Caregiver-Student Collaborative Learning on an Urban Community.
Creator
Edmundson, Heather, Hopp, Carolyn, Lue, Martha, Vitale, Thomas, Olan, Elsie, University of Central Florida
Abstract / Description
The purpose of this study was to measure the impact of caregiver-student collaborative learning classes on an urban community. The study examined whether the self-efficacy of the caregivers increased with helping their children with school work due to the caregiver-student classes. The study also examined whether providing access to a resource not normally provided within this particular community led to increased self-efficacy within caregivers. The research questions that guided the study...
Show moreThe purpose of this study was to measure the impact of caregiver-student collaborative learning classes on an urban community. The study examined whether the self-efficacy of the caregivers increased with helping their children with school work due to the caregiver-student classes. The study also examined whether providing access to a resource not normally provided within this particular community led to increased self-efficacy within caregivers. The research questions that guided the study were as follows: How do collaborative caregiver-student classes that focus on collaborative strategies impact the self-efficacy of the caregivers in helping their children with school work? How does increasing access to educational services impact the self-efficacy of the caregivers who participate in collaborative caregiver-student classes? The researcher collected data through classroom observations, reflections from participants, and an initial focus group and closing individual interview. Classes were taught by a co-teacher selected by the researcher with the input of the principal. Four total sessions were held, three of which included the teaching of collaborative learning strategies, and the last of which was an individual interview.Overall, data indicated increased self-efficacy within caregivers. The caregiver roles within the neighborhood proved not to always be between an adult and child, but rather cousins and siblings who may have been close in age. Families within the neighborhood exchanged care in different ways according to their culture, work demands, and family dynamic. This program led to strengthened relationships between home and school, as well as enhanced self-efficacy and stronger relationships between caregivers and students.
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Date Issued
2014
Identifier
CFE0005327, ucf:50534
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0005327
THE ASSOCIATION OF ATTACHMENT STYLE AND PERCEPTIONS OF CAREGIVER EXPERIENCE
Title
THE ASSOCIATION OF ATTACHMENT STYLE AND PERCEPTIONS OF CAREGIVER EXPERIENCE.
Creator
Luther, Kandace, Paulson, Daniel, University of Central Florida
Abstract / Description
This research examines caregiver experiences as they relate to attachment style. The overarching hypothesis is that perceptions of the caregiver role differ depending on the degree of avoidance and anxiousness in the caregiver's attachment style. Caregiver response was measured in the areas of filial obligation, work reduction, perceived control, caregiver burden, depressive symptomatology, and preparedness for caregiving. The final sample consisted of 150 caregivers who identified as the...
Show moreThis research examines caregiver experiences as they relate to attachment style. The overarching hypothesis is that perceptions of the caregiver role differ depending on the degree of avoidance and anxiousness in the caregiver's attachment style. Caregiver response was measured in the areas of filial obligation, work reduction, perceived control, caregiver burden, depressive symptomatology, and preparedness for caregiving. The final sample consisted of 150 caregivers who identified as the primary caregiver for a parent over the age of 65. This sample was recruited using Mechanical Turk, an online survey distribution tool. The survey was created online with Qualtrics software. Data were analyzed using SPSS software, and procedures primarily focused on correlational and descriptive statistics. The results revealed several significant correlations between attachment style and caregiver burden as well as depression, supporting the hypothesis that attachment style is associated with differences in perception of the caregiver experience. This research is motivated by the increasingly urgent need for caregiver support through financial aid, counseling services, and cohesive healthcare options.
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Date Issued
2014
Identifier
CFH0004705, ucf:45408
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004705
BLACK CAREGIVER RESPONSES TO AND PERCEPTIONS OF SIGNS, SYMPTOMS, AND TREATMENTS AT THE END OF LIFE
Title
BLACK CAREGIVER RESPONSES TO AND PERCEPTIONS OF SIGNS, SYMPTOMS, AND TREATMENTS AT THE END OF LIFE.
Creator
Sermarini, Samantha M, Connor, Norma E., University of Central Florida
Abstract / Description
Individuals in the final stages of life are often cared for by informal caregivers whose interpretation of the patient�s signs, symptoms and treatment needs and options may be incongruent with that of healthcare providers (Docherty et al., 2008). Nurses need to fully understand the scope of this disparity. The purpose of this study was to determine how Black caregivers interpreted signs, symptoms, and treatments for symptom relief during the last months of their loved one�s life. The effect...
Show moreIndividuals in the final stages of life are often cared for by informal caregivers whose interpretation of the patient�s signs, symptoms and treatment needs and options may be incongruent with that of healthcare providers (Docherty et al., 2008). Nurses need to fully understand the scope of this disparity. The purpose of this study was to determine how Black caregivers interpreted signs, symptoms, and treatments for symptom relief during the last months of their loved one�s life. The effect on caregiver decision making was explored. This project is a secondary analysis of preexisting qualitative data. Transcripts from 5 focus groups encompassed 53 participants. All participants were Black and informal caregivers or decision makers for a loved one at their loved one�s end of life. Eighty-seven percent of caregivers were female, and a majority had a high school education. The mean age was 66. Transcripts were coded for themes independently by two researchers. To allow for the most open interpretation, no a priori set of codes was utilized. 3 main categories of signs, 4 main categories of symptoms, 4 themes of the interpretation of signs and symptoms, 4 main categories of treatments and interventions, 5 themes of the interpretation of treatments, and 3 themes describing the effect of signs, symptoms, and treatments on decision making were identified. Case examples of the caregiver interpretation process are included. Health care providers need to provide time, clear and simplified language, and additional explanation in communication. Further research combining health literacy measures and qualitative data on interpretations should be conducted.
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Date Issued
2016
Identifier
CFH2000017, ucf:45584
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000017
Young Adult Development and Caregiving: Disposition and Involvement in Care
Title
Young Adult Development and Caregiving: Disposition and Involvement in Care.
Creator
James, Nicholas, Paulson, Daniel, Dvorak, Robert, Wharton, Tracy, University of Central Florida
Abstract / Description
Caregivers are a diverse group of individuals with a variety of backgrounds and roles; however, research has widely overlooked young adults in this population. This study investigated young adult caregiver circumstance, burden, and use of support services with the purpose of improving future caregiving research and interventions. Study 1 compared burden and circumstance among young, middle aged, and older adult caregivers (N = 285) in addition to developmental indicators among young adults...
Show moreCaregivers are a diverse group of individuals with a variety of backgrounds and roles; however, research has widely overlooked young adults in this population. This study investigated young adult caregiver circumstance, burden, and use of support services with the purpose of improving future caregiving research and interventions. Study 1 compared burden and circumstance among young, middle aged, and older adult caregivers (N = 285) in addition to developmental indicators among young adults caregiver and demographically matched non-caregiver peers (n = 225). Study 2 surveyed caregivers from each age group (N = 151) on barriers to care, treatment preferences, and interest in services. Results from study 1 indicated that young adult caregivers adopted similar caregiving roles and factors linked to burden; however, they reported additional stressors such as higher rates of childcare and commuting to provide care. Compared to demographically matched-peers, young adult caregivers were more likely to work part-time and earn a substantially lower yearly income. Study 2 replicated original findings and revealed that young adult caregivers endorsed elevated attitudinal barriers to care and are the least likely age group to speak to physicians about caregiving. Overall, findings reveal the similarity in caregiving role that young adults take on, as well as several unique burden factors. Caregivers across age groups disclosed moderate treatment expectancy for support services, and all reported greater interest in online-based treatment. Young adult caregivers were more likely to take on responsibilities such as childrearing and employment, thus impacting their available time and financial support. However, these findings do not explain the overwhelming lack of young adult caregivers in research. Future studies should re-evaluate sampling methods and inclusion criteria, or explore more accessible means of intervention, such as web-based services.
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Date Issued
2018
Identifier
CFE0007018, ucf:52027
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0007018
EXPLORING SUPPORTED CONVERSATION WITH FAMILIAL CAREGIVERS OF PERSONS WITH MEMORY IMPAIRMENT: A PILOT STUDY
Title
EXPLORING SUPPORTED CONVERSATION WITH FAMILIAL CAREGIVERS OF PERSONS WITH MEMORY IMPAIRMENT: A PILOT STUDY.
Creator
Willis, Arielle, Whiteside, Janet, University of Central Florida
Abstract / Description
Teaching conversational strategies has been effective for a wide array of clients with acquired neurologic disorders and their caregivers. Research indicates positive results for Supported Conversation in adults with Aphasia (SCA) secondary to stroke. Applying this method to work with caregivers of persons with memory impairment could prove to be a valid intervention tool. This investigation will examine the applicability of SCA with persons with memory impairment and their familial...
Show moreTeaching conversational strategies has been effective for a wide array of clients with acquired neurologic disorders and their caregivers. Research indicates positive results for Supported Conversation in adults with Aphasia (SCA) secondary to stroke. Applying this method to work with caregivers of persons with memory impairment could prove to be a valid intervention tool. This investigation will examine the applicability of SCA with persons with memory impairment and their familial caregivers. This pilot study is intended to create a conversation regarding SCA and its implementation with persons with memory impairment who still live in the community with their caregivers. Analysis between the pre-training and post-training scores showed a trend to wards significance for Time (F(1, 9) = 0.064), no significance for Measure (F(3, 9) = 0.558), and no significance for the interaction of Time*Measure (F(3, 9) = 0.276). The effect size for Time was 0.732, for Measure was 0.494 and for Time*Measure was 0.956.
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Date Issued
2016
Identifier
CFH2000139, ucf:46044
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH2000139
AN EVALUATION OF TRACHEOSTOMY CARE ANXIETY RELIEF THROUGH EDUCATION AND SUPPORT (T-CARES): A PILOT STUDY
Title
AN EVALUATION OF TRACHEOSTOMY CARE ANXIETY RELIEF THROUGH EDUCATION AND SUPPORT (T-CARES): A PILOT STUDY.
Creator
Crosby, William, Sole, Mary Lou, University of Central Florida
Abstract / Description
Background: Home care of a patient with a tracheostomy after surgery for head and neck cancer requires the caregiver to be proficient with new equipment and required skills. The responsibility of managing an artificial airway, may lead to an increase in caregiver anxiety. Education of caregivers varies; it is often a 1:1 impromptu instruction provided by the patient's nurse and/or respiratory therapist. The purpose of this study was to evaluate the effect of the T-CARES course on caregiver...
Show moreBackground: Home care of a patient with a tracheostomy after surgery for head and neck cancer requires the caregiver to be proficient with new equipment and required skills. The responsibility of managing an artificial airway, may lead to an increase in caregiver anxiety. Education of caregivers varies; it is often a 1:1 impromptu instruction provided by the patient's nurse and/or respiratory therapist. The purpose of this study was to evaluate the effect of the T-CARES course on caregiver anxiety and tracheostomy suctioning competency. Method: A quasi-experimental non-randomized control group design was used. The independent variable was method of instruction (T-CARES versus standard). Dependent variables were caregiver anxiety and tracheostomy suction competence. Caregivers (n=12) self selected into groups based on availability to attend T-CARES course. The control group was to receive the unit-based standard of education. The experimental group participated in the T-CARES course. Only one person chose to be in the control group; therefore, data were analyzed for the experimental group only (N=11). The T-CARES course, created by the researcher, was standardized and instructor-led; it incorporated media and simulated practice. Caregiver anxiety for both groups was obtained before (State/Trait Anxiety) and after (State Anxiety) tracheostomy care instruction was provided. Tracheostomy suctioning competence was assessed using a standardized checklist for participants in the T-CARES study group only. Demographic data were summarized with frequencies and descriptive statistics. Given the small sample size, non-parametric statistics were used for data analysis. Results: Data were analyzed from the experimental group only (n=11). The majority of caregivers were women (n=7), white/caucasian (n=10), married (n=8), employed full time (n=7), and were high school graduates or higher (n=10). The mean age of participants was 50.8 years. Seven of the participants reported previous caregiver experience. Mean score of caregiver trait anxiety was 36.8. Mean caregiver state anxiety score was 50.5 before, and 34.3 after the T-CARES intervention. A Related-Samples Wilcoxon Signed Rank Test was performed on the pre and post T-CARES intervention state anxiety scores. The T-CARES intervention significantly reduced anxiety (p=.008). Tracheostomy suctioning competency for 9 of the participants was evaluated upon completion of T-CARES. Mean score was10.8 skills performed correctly out of a possible 14. Caregivers' responses regarding their biggest fear/concern about tracheostomy care included "not doing it right," "trach coming out or being blocked," "hurting the patient," and "not being able to help in an emergency." Participants' suggestions for future improvements were creation of a Spanish language course and the addition of supplementary training to include CPR, First Aid, and the management of feeding tubes. Discussion: Research supported the hypothesis that the T-CARES course would be successful in reducing state anxiety. The T-CARES course also had a positive impact on tracheostomy suctioning competency, though without a control group it is difficult to quantify the effect. The continued development and dissemination of T-CARES to all tracheostomy patients and their caregivers may ease their transition home. The views expressed are those of the author and do not reflect the official policy or position of the US Air Force, Department of Defense or the US Government.
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Date Issued
2012
Identifier
CFH0004138, ucf:44824
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004138
ADOLESCENT AND CAREGIVER IDENTITY DISTRESS, IDENTITY STATUS, AND THEIR RELATIONSHIP TO PSYCHOLOGICAL ADJUSTMENT
Title
ADOLESCENT AND CAREGIVER IDENTITY DISTRESS, IDENTITY STATUS, AND THEIR RELATIONSHIP TO PSYCHOLOGICAL ADJUSTMENT.
Creator
Wiley, Rachel, Berman, Steven, University of Central Florida
Abstract / Description
The present study addresses identity distress and identity status in adolescents with clinical diagnoses, and their caregivers. There were 88 adolescent participants (43.2% female) ranging in age from 11 to 20 (mean =14.96; SD =1.85) who were recruited from community mental health centers in Volusia and Orange Counties. The 63 caregiver participants included mothers (82.5%), fathers (7.9%), grandmothers (7.9%), and grandfathers (1.6%), ranging in age from 28-70 (mean = 40.24; SD = 9.16). A...
Show moreThe present study addresses identity distress and identity status in adolescents with clinical diagnoses, and their caregivers. There were 88 adolescent participants (43.2% female) ranging in age from 11 to 20 (mean =14.96; SD =1.85) who were recruited from community mental health centers in Volusia and Orange Counties. The 63 caregiver participants included mothers (82.5%), fathers (7.9%), grandmothers (7.9%), and grandfathers (1.6%), ranging in age from 28-70 (mean = 40.24; SD = 9.16). A significant proportion of adolescents (22.7%) met criteria for Identity Problem in the Diagnostic and Statistical Manual of Mental Disorders (4th ed., text rev.; American Psychiatric Association, 2000) and 9.5% of the adolescents' caregivers met criteria for Identity Problem. Regarding identity status, 68.2% of adolescents and 27.0% of caregivers reported being in the diffused status. Additionally, 25.0% of adolescents and 54.0% of caregivers met criteria for the foreclosed status. Significant associations were found among adolescent and caregiver psychological symptoms and identity variables. Further examination of the psychological symptom variables found that obsessive-compulsive and paranoid ideation symptoms significantly predicted identity distress. In addition, caregiver identity commitment significantly predicted adolescent identity distress over and above the adolescents' identity variables. These findings and implications are discussed in further detail.
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Date Issued
2009
Identifier
CFE0002743, ucf:48181
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0002743
Perceived readiness to transition to adult health care for youth with cystic fibrosis and congruence with their caregivers' views
Title
Perceived readiness to transition to adult health care for youth with cystic fibrosis and congruence with their caregivers' views.
Creator
Lapp, Valerie, Chase, Susan, Aroian, Karen, Weiss, Josie, Yan, Xin, Robinson, Patricia, University of Central Florida
Abstract / Description
Youth with cystic fibrosis must gradually assume considerable self-care management skills in order to optimize longevity and quality of life, and healthcare providers and caregivers play a role in youth gradually assuming these skills. The purpose of this study was to determine how youth with cystic fibrosis perceive their self-care management skills required for transition to adult healthcare, the relationship between age and skill acquisition, youth and caregiver congruence on perceived...
Show moreYouth with cystic fibrosis must gradually assume considerable self-care management skills in order to optimize longevity and quality of life, and healthcare providers and caregivers play a role in youth gradually assuming these skills. The purpose of this study was to determine how youth with cystic fibrosis perceive their self-care management skills required for transition to adult healthcare, the relationship between age and skill acquisition, youth and caregiver congruence on perceived transition readiness, and frequency of transition discussion with provider. In this descriptive, correlational, cross-sectional design, 58 youth ages 14-22 rated their skill ability in managing cystic fibrosis using the Transition Readiness Assessment Questionnaire (TRAQ) during visits to the cystic fibrosis clinic. Using an adapted version of the questionnaire, the TRAQ-C, 52 caregivers also rated youth readiness to transition to determine congruence in self-care management ability. Five simple regressions were calculated to determine age effects for the self-care management skills. Independent t-tests were used to compare mean scores of youth and caregiver perceptions of self-care management skills. Age predicted youth perception of readiness for self-care management skills. Youth scored significantly higher than their caregivers did in perception of self-care skill management. Study findings suggest that preparation for transition to adult care should begin at an earlier age to prepare youth to assume self-care. Including transition discussion with youth and caregiver assessments using questionnaires such as the TRAQ and TRAQ-C may guide learning of skills and timing of transition to adult health care.
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Date Issued
2016
Identifier
CFE0006133, ucf:51185
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFE0006133
TRAUMA-FOCUSED MODELS FOR CAREGIVERS: A SYSTEMATIC REVIEW OF EMPIRICAL RESEARCH
Title
TRAUMA-FOCUSED MODELS FOR CAREGIVERS: A SYSTEMATIC REVIEW OF EMPIRICAL RESEARCH.
Creator
Paul, Wesley, Lawrence, Shawn, University of Central Florida
Abstract / Description
Child and Adolescent caregivers are rarely the focus of research and/or trauma-focused or informed models when working with traumatized children (Baynard, Englund, & Rozelle, 2001; Chapman, Dube, & Anda, 2007). It has been shown that use of caregivers in the treatment of children who have suffered trauma can have a significant impact on not only the child, but also reduce the trauma symptoms of the caregivers themselves (Cohen, Mannarino, & Staron, 2006). The purpose of this study is to...
Show moreChild and Adolescent caregivers are rarely the focus of research and/or trauma-focused or informed models when working with traumatized children (Baynard, Englund, & Rozelle, 2001; Chapman, Dube, & Anda, 2007). It has been shown that use of caregivers in the treatment of children who have suffered trauma can have a significant impact on not only the child, but also reduce the trauma symptoms of the caregivers themselves (Cohen, Mannarino, & Staron, 2006). The purpose of this study is to critically review the empirical research of trauma-focused and trauma-informed trainings and treatment models for children who have suffered some form of trauma and whose caregiver is included in the treatment. The outcomes of trauma-focused models will be examined in terms of its purpose, intervention, facilitation, adaptability and modification. Implications for further research and application are drawn.
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Date Issued
2013
Identifier
CFH0004369, ucf:45026
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004369
SUPPORT SYSTEMS IN ADOLESCENTS WITH TYPE 1 DIABETES MELLITUS AND THE RELATIONSHIP TO DIABETES-RELATED STRESS, CONFLICT, AND METABOLIC CONTROL
Title
SUPPORT SYSTEMS IN ADOLESCENTS WITH TYPE 1 DIABETES MELLITUS AND THE RELATIONSHIP TO DIABETES-RELATED STRESS, CONFLICT, AND METABOLIC CONTROL.
Creator
Foarde, Samuel, LaManna, Jacqueline, University of Central Florida
Abstract / Description
The purpose of this integrated review of the literature was to explore the effects of social support on diabetes-related stress, conflict, and metabolic control in adolescents with type 1 diabetes mellitus (T1DM). Social support was examined in four subgroups: adolescents with T1DM, family caregivers, peers, and teachers. Relevant findings in the literature revealed a significant deficiency of research devoted to adolescent males with diabetes as well as fathers as primary and secondary...
Show moreThe purpose of this integrated review of the literature was to explore the effects of social support on diabetes-related stress, conflict, and metabolic control in adolescents with type 1 diabetes mellitus (T1DM). Social support was examined in four subgroups: adolescents with T1DM, family caregivers, peers, and teachers. Relevant findings in the literature revealed a significant deficiency of research devoted to adolescent males with diabetes as well as fathers as primary and secondary caregivers. Studies highlighted the importance of fostering autonomy and positive self-image in adolescents with T1DM and described effective interventions to improve diabetes-related stress, reduce disease-related conflict, and improve metabolic control. Findings suggested that nurses caring for adolescents with T1DM and their families should foster positive, open communication, while identifying barriers to problem solving, coping, stress, and optimal glycemic control. Interventions that educate caregivers and peers on how to better communicate and provide support are critical in fostering positive psychological and physiological outcomes in the adolescent with T1DM. The findings of this study may provide guidance in the way that nurses assess, identify, and counsel adolescents with TIDM regarding their disease management and access to support systems.
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Date Issued
2013
Identifier
CFH0004324, ucf:45057
Format
Document (PDF)
PURL
http://purl.flvc.org/ucf/fd/CFH0004324